Lymphedema affects millions worldwide, yet is often largely neglected by healthcare providers and systems. This condition is often referred to as a ‘Cinderella subject’ as it is largely ignored, leaving those afflicted often feeling abandoned and hopeless. This is not a medical text book but a personal account of living with lymphedema which is heart-warming, funny, anecdotal and genuinely inspires hope. It takes the reader on a forty year crusade, tackling hosiery, massage, buying clothes and the ‘F’ word –‘funding.’ It explores the pitfalls and possibilities associated with this condition as the reader embarks on a journey towards self-acceptance. A truly enjoyable read that enables you to take ownerships of this disorder. It includes chapters on diet and day-to-day living as well as exploring exciting new developments in the treatment of lymphedema, from LVA surgery to the remarkable new wonder drug that is Ketoprofen. “Learn to laugh and laugh with others. Enjoy trying new things. Take up meditation. Enjoy new foods and adventures. Learn how to manage this condition and by all means put some time aside for it each day. – But make damn sure the rest belongs to you!”
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I graduated from Durham University and spent years in education including working in Russia. This book is about my struggle with this awful condition that affects millions worldwide