About Finding Connection and Fulfillment in the Face of Motor Neuron Disease: Navigating ‘Locked-In-Syndrome’, Health Care, and the Power of Community and Communication
In “Finding Connection and Meaning in the Face of Motor Neuron Disease,” Ute Schlossmacher shares her battle with Locked-In Syndrome due to MND. Despite severe physical restrictions, she finds strength in community support, tackling health care challenges and preserving communication, highlighting human resilience and the profound impact of connection.
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Author Bio:
Ute Schlossmacher, a passionate farmer come nurse later in life was experiencing the happiest time of her life when she received the diagnosis of Motor Neuron Disease. As a nurse she knew all to well what was ahead of her. Ute was determined to live her life as independently as possible, to make a difference to others and most of all to allow herself to be as happy as she was before symptoms of her illness appeared.
Ute had lived a physically active life in several European countries, starting out in Germany, then moving to Austria subsequently to Luxembourg, and Belgium, where she worked as a biodynamic farmer for 17 years. After the break up of her marriage Ute retrained as a nurse and went on to work in Luxembourg in her new profession. It turned out to be equally important to her as farming had been.
When she arrived in the UK her wish to be active in both her professions became reality. She became bilingual at the age of the age of 46/47 with only her school English to start with.
Embracing this new culture and language Ute enjoyed her life doing what she loved the most when the emergence of her illness changed everything…